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Spinal Cord Injury: A Guide for Living (A Johns Hopkins Press Health Book)
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From Library Journal
Before the middle of the 20th century, most people with a spinal cord injury (SCI) died within a few years of the injury. Today, with advances in emergency medicine, the initial survival rate is much higher. About 220,000 people in the United States live with SCI, and about 10,000 new injuries occur each year. The authors, all rehab professionals associated with Johns Hopkins University School of Medicine, firmly believe that a meaningful life is more than possible after injury and that recovery and adjustment is greatly improved when people know what to expect physically and emotionally during recovery. Divided into three parts that roughly cover the sequence of events during recovery, this book is written as a navigational tool for people with SCI and their families. Illustrating each chapter with the personal histories of patients, the text covers what will happen during initial hospitalization, rehabilitation therapy, readjusting to home, the effects of spinal cord injury on other family members, dating and sexuality, independent living choices, and current research. The book is well organized, and each chapter can be read independently. While it doesn't necessarily provide the "how-to" about some practicalities, this guide does give a complete picture of the road to recovery and the psychosocial issues that need to be resolved to live successfully with SCI. For disability/rehabilitation consumer health collections.-Kate Kelly, Massachusetts General Hosp. Lib., Boston Copyright 2000 Reed Business Information, Inc.
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Review
"This book has the potential for significantly improving the quality of life of patients with spinal cord injury." -- Elana FaracePhD, Journal of Neurosurgery"Written in a compelling manner that is easy to read, the book begins from a medical perspective, with an informative description of what to expect immediately following injury. An excellent resource, both for survivors and also for those providing support and assistance." -- SCI access"A comprehensive overview of the challenges faced by both the newly injured and those who have longer experience in coping with the multitude of changes that occur following a spinal cord injury." -- Maureen DavisMSN CRRN, Rehabilitation Nursing"This book does a very good job of taking someone from the moment of injury, to hospital and rehabilitation, and into adjusting to life and relationships with a disability. It is easy to read and does not use a great deal of jargon in describing the physical and medical aspects of spinal cord injury. Anyone who has a friend, colleague, or family member confronted by this trauma might find this a useful gift in difficult circumstances." -- Disability Studies Quarterly
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Product details
Series: A Johns Hopkins Press Health Book
Hardcover: 312 pages
Publisher: The Johns Hopkins University Press; 1 edition (April 21, 2000)
Language: English
ISBN-10: 080186352X
ISBN-13: 978-0801863523
Product Dimensions:
6.5 x 1 x 9.8 inches
Shipping Weight: 1.4 pounds
Average Customer Review:
4.0 out of 5 stars
8 customer reviews
Amazon Best Sellers Rank:
#4,099,350 in Books (See Top 100 in Books)
I found this book an excellent source of down to earth information and guidance. It is clear, well-written and easy to read. I recommend it highly to people living with Spinal Cord Injury, their Caregiving Spouses, and psychotherapists working with clients impacted by such injuries. It covers all the bases and as such is a highly valuable contribution to the world of Spinal Cord Injury.
Interesting read. Lots of good facts about SCI
This book is quite informative about this subject and serves as an entree to the subject! I recommend the previous book more highly.
Since my SCI in May of 1999 we have accumulated a pile of books dealing with various aspects of SCI. At 1/10th the price, this book is many times better than any of the others. Their down to earth approach leads you from the point of injury until the day you make the transition from patient to the new you. Outstanding!
I had the opportunity to meet Dr. Sara Palmer at a volunteer event for people with various disabilities. Her authenticity immediately became evident. We had lunch and discussed her book and experience in rehabilitation. A quick lunch and coffee became a 2 ½ hour conversation!As a C5-C6 SCI of 23 years, I can honestly state that Dr. Palmer has a comprehensive understanding of the onset of SCI and what it means to live with a significant disability. She is NOT solely an academic; in fact, Sara is passionate about SCI and helping the individual and his or her family adapt and thrive.Let’s discuss a bit about the book. I asked myself whether or not the format and content of the book would be helpful to me and my family in the days immediately following my injury in 1992—the answer is yes. The use of medical terminology may make the book seem rigid and academic, but it is incredibly necessary because those who sustain a SCI need a crash course on understanding who they are biologically in order to recover function and maintain their health over the years. Including stories from those with SCI provides hope for the individual who is most likely overwhelmed.In addition, including information on romantic relationships, independent living, and advances in treatment give the reader a sense of balance that they are not a diagnosis, but still a person who can experience a satisfying Quality of Life.Let’s be honest here, living with a SCI presents many challenges, so I don’t know that there is any book that could be written that leaves one feeling warm, fuzzy, and content. The power in this book is that it is realistic and captures a lot of complex emotions and topics associated with SCI.As a rehabilitation counselor and founder of an organization devoted to improving the lives of folks with SCI, I recommend this book to anyone recently injured or living with this disability.
T-8 thru 12, L1-5, rods, screws the whole big deal. After a month in rehab, and a month at home, I was lost and confused. I got this book read it cover to cover and I started to understand what happened to me and how I was now going to live going forward. Absolutely a must read for anyone with a spinal cord problem. Learning to live with all the issues that come with spinal cord damage is hard but this book was the best tool for getting your life back on track. Thank you Ms. Palmer for explaining how to live with this life changing event.
Although I appreciate the effort and dedication of the authors, I must warn my disabled brethren that no book will teach YOU how to live withYOUR disability. Only you can prevent stairs! ;)
This book quickly made it to my discard pile. It is full of speculative information from the outside by able bodied professionals who are clueless about the day to day reality of SCI. I would not recommend this book as a useful reference for anyone affected by SCI.
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